His Dream. Our Mission.
Supporting families affected by rare disease through community, wellness, and hope
Supporting families affected by rare disease through community, wellness, and hope
Advancing research and innovation to move closer to cures for Duchenne muscular dystrophy and other rare diseases.
Eliminating barriers so everyone—regardless of circumstance—can access care, support, and meaningful opportunities.
Amplifying voices, promoting self-advocacy, and driving policy change within rare disease and disability communities.
Centering lived experiences and offering support rooted in humility, compassion, and respect.
Using art, movement, and storytelling as tools for connection, healing, and emotional well-being.
Patricia is the founder of Damian’s Project, a non-profit organization dedicated to rare disease initiatives, inspired by her son, who had Duchenne Muscular Dystrophy (DMD). Driven by a mission to end DMD, Patricia also focuses on raising awareness about related implications such as disability, neurodivergence, chronic illness, and mental health.
With a bachelor's degree in health sciences, Patricia brings a deep understanding of the complexities surrounding rare diseases. She is also a certified yoga, Tai Chi, and Qi Gong instructor, incorporating these practices into her advocacy work to promote holistic well-being.
Through Damian’s Project, Patricia has created a supportive community, bringing people together to foster awareness, support, and hope for those affected by rare diseases and their families.
Christine is the program curator and outreach liaison at Damian’s Project.
As a certified yoga teacher with a background in music, Christine leads yoga and sound meditation, incorporating the healing benefits of Himalayan sound bowls in her practice. Her classes are trauma-informed, nurturing and grounding.
Christine is passionate about being a part of Damian’s Project and values nurturing safe and inclusive spaces for people with diverse needs.
She looks forward to bringing community members together to share their knowledge, artistry and passions.
Eve (she/her) is a settler Canadian of mixed-European ancestry born on Mi’kmaq territory, and has been an uninvited guest on the traditional, ancestral and unceded land of the sḵwx̱wú7mesh (Squamish), sel̓íl̓witulh (Tsleil-Waututh), and xʷməθkʷəy̓əm (Musqueam) Nations since 2014.
She brings extensive experience designing and managing programs related to social justice and DEI, communicating hard-to-measure outcomes, and building capacity for social change in trauma-informed spaces – approaching it all with a neurodivergent brain.
She’s had a 20+- year relationship with yoga and movement practices and has completed several teacher trainings. She’s thrilled to be combining her commitment to social justice and accessibility, with passion for creating inclusive wellbeing spaces through her work with Damian’s Project
Community events are at the heart of Damian's Project. Through yoga classes, charity walks, educational workshops, and fundraising events, we bring people together to support families affected by rare disease.
Join us and help create a world where everyone is supported, understood, and included.
Damian was diagnosed with Duchenne muscular dystrophy (DMD) at age 8. Despite this, he never let his physical limitations stop him from exploring his many passions — outer space, drawing, marine life, high-speed trains, and science. His curious nature made him quick-witted, with a snappy comeback always ready.
Damian dreamed of creating a community that welcomed everyone. As someone who was also neurodivergent, he understood how disability isolates people. He envisioned a space built on support and free of judgment — safe for all bodies, abilities, and lived experiences.
In the summer of 2023, Damian passed away in his sleep. Though he lost his battle with DMD, the fight isn't over. Damian's Project continues his mission: supporting families affected by rare disease, advancing the search for a cure, and building the inclusive community he always dreamed of.
We’d love to hear from you.
